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Shire Exhibit : Hunter in Focus

Shire Exhibit : Hunter in Focus

22 May 2013

Shire is launching its new Exhibit : Hunter in Focus, a Positive Exposure™ Project on Hunter Syndrom which takes place from the 15th to the 29th of May at the Terre-Bonne Park.
Hunter In Focus is the first global photography exhibit to raise awareness for Hunter syndrome, a rare and progressive genetic disorder. This exhibit shares the stories of remarkable individuals and their personal journey with the disorder.

In partnership with Shire Human Genetic Therapies (HGT), Rick Guidotti, founder of Positive Exposure™, traveled around the world photographing people with Hunter syndrome with the hope of increasing awareness for the disorder. Because the signs and symptoms of Hunter syndrome are common to many childhood ailments, it is often difficult to diagnose.

Hunter In Focus provides an opportunity to aid in the recognition of Hunter syndrome in a unique and engaging format. The stories of Hunter patients have been captured and told through these photographs, focusing on the person, rather than defining them by this debilitating disorder.

The exhibit was launched in 2012 in New York City and traveled to Poland and Germany in its inaugural year.